Sunday, May 16, 2010

Thank You

I just wanted to post a quick message to say thank you. Thank you to everyone who has read our most recent post and cared about our son, thank you to those who commented, those who didn’t, those who sent email, said a prayer, or sent good vibes into the universe. We appreciate all of it!

For those interested in learning more about 18q deletion syndrome, I‘d advise you to check out the Chromosome 18 Research & Registry Foundation. The foundation does research on the 7 conditions resulting from an abnormality of chromosome 18, as well providing support to the parents and individuals affected. Here is a link to the page about 18q-.

Some of the info on the web is rather outdated.

If you have any questions about the syndrome, please let me know and I’ll do my best to answer.

2 comments:

Meant to be a mom said...

I'll still be praying for your little man. I try to remember my bloggy friends each day in my prayers.

Heidi (Scarlet1Begonia) said...

Hang in there Sweetie. I can't even begin to imagine the frustration that you and Joel are going through, but I can see through your words and pictures the unbelievable amount of love and patience that you guys have, and it'll pay off in the end. You are such an amazing mother, if I'm half as good a mother in the future as you are to Graham I'll consider myself blessed. Love you!